Dementia Resources Guide

Education 
Dementia Training Australia https://dta.com.au/ 
The University of Tasmania 'Understanding Dementia' MOOC https://www.utas.edu.au/wicking/understanding-dementia 
Dementia Daily https://www.dementia.org.au/resources/dementia-daily 
Eastern Cognitive Disorders Clinic https://ecdc.org.au/ftd-toolkit 
FTD Talk https://www.ftdtalk.org/ 
FTD Disorders Registry https://ftdregistry.org/ 
Dementia Australia https://www.dementia.org.au/ 
The American FTD Association https://www.theaftd.org/
The University of California Memory & Ageing Centre https://memory.ucsf.edu/dementia/ftd
The Australian Aphasia Association https://aphasia.org.au/
Formal Support 
National Disability Insurance Scheme https://www.ndis.gov.au/   
MyAgedCare Commonwealth Home Support Programme https://www.myagedcare.gov.au/help-at-home/commonwealth-home-support-programme 
Services Australia Carer Allowance https://www.servicesaustralia.gov.au/carer-allowance
Services Australia Disability Support Pension https://www.servicesaustralia.gov.au/disability-support-pension 
Services 
Australian Dementia Network https://www.australiandementianetwork.org.au/ 
Dementia Australia https://www.dementia.org.au/ 
Dementia Australia Counselling https://www.dementia.org.au/support/counselling
Carer Gateway Australia https://www.carergateway.gov.au/ 
Carers NSW https://www.carersnsw.org.au/ 
Dementia Behaviour Management Advisory Service https://www.dementia.com.au/dbmas
Older Person Advocacy Network (OPAN) https://opan.org.au/
Australian Pain Management Association https://www.painmanagement.org.au/ 
Palliative Care Advice Service https://www.pcas.org.au/ 
National Continence Helpline https://www.continence.org.au/
Disability Support Guide https://www.disabilitysupportguide.com.au/
Nursing Home Guide Australia https://www.agedcareguide.com.au/ 
Aids for daily living https://shop.dps.com.au/ 
NDIS Provider Lists  
Full list of NSW NDIS providers (2021) https://ndis.gov.au/media/1402/download 
Full list of VIC NDIS providers (2021) https://ndis.gov.au/media/3022/download 
Full list of TAS NDIS providers (2021) https://www.ndis.gov.au/media/256/download 
Full list of WA NDIS providers (2021) https://www.ndis.gov.au/media/260/download 
Full list of SA NDIS providers (2021) https://www.ndis.gov.au/media/253/download 
Full list of NT providers (2021) https://www.ndis.gov.au/media/248/download 
Future Planning 
Australian Guardianship
Guardianship in New South Wales https://www.tag.nsw.gov.au/forms/enduring-guardian-forms 
Guardianship in Victoria https://www.vcat.vic.gov.au/case-types/guardians-and-administrators 
Guardianship in Western Australia https://www.sat.justice.wa.gov.au/G/guardianship_and_administration.aspx 
Guardianship in Queensland https://www.qcat.qld.gov.au/matter-types/guardianship-for-adults-matters/application-process 
Guardianship in Tasmania https://www.guardianship.tas.gov.au/forms2 
Guardianship in Northern Territory https://ntcat.nt.gov.au/getting-started/forms# 
Enduring Power of Attorney https://info.australia.gov.au/information-and-services/family-and-community/wills-and-powers-of-attorney/powers-of-attorney 
Wills https://info.australia.gov.au/information-and-services/family-and-community/wills-and-powers-of-attorney/wills 
Advanced Care Directive https://www.health.gov.au/topics/palliative-care/planning-your-palliative-care/advance-care-directive 
Dementia Research Participation
StepUpforDementia http://www.stepupfordementiaresearch.org.au/ 
Clinical trials website https://www.clinicaltrials.gov/ 
https://www.anzctr.org.au/
FTD Disorders Registry https://ftdregistry.org/ 

 

How can I access government funded support services if I am <65yo? Formal support applications
National Disability Insurance Scheme (NDIS) https://www.ndis.gov.au/   
Eligibility: https://www.ndis.gov.au/applying-access-ndis/am-i-eligible 
Application process: https://www.ndis.gov.au/applying-access-ndis/how-apply 
Application form: https://www.ndis.gov.au/how-apply-ndis/what-access-request-form
NSW NDIA Providers: https://ndis.gov.au/media/1402/download 
How can I access government funded support if I am over 65yo? Aged Care Package https://www.myagedcare.gov.au/
Eligibility: https://www.myagedcare.gov.au/am-i-eligible
Application process: https://www.myagedcare.gov.au/assessment 
Can someone help me navigate AgedCare? Care About Australia https://www.careabout.com.au/how-it-works
Disability Support Pension https://www.servicesaustralia.gov.au/disability-support-pension
Carer Allowance https://www.servicesaustralia.gov.au/carer-allowance
Where can I be assessed for dementia in Australia? Dementia Clinics
Cognitive Decline Assessment Clinic https://www.australiandementianetwork.org.au/initiatives/memory-clinics-network/find-a-clinic-or-service/
https://www.australiandementianetwork.org.au/initiatives/memory-clinics-network/information-for-memory-and-cognition-clinic-clients/
Who can I contact if I need urgent information about dementia? 24/7 Dementia Helplines
National Dementia Helpline 1800 100 500
Dementia Support Australia Helpline 1300 757 024
Who can I contact if I have speech and hearing impairment? Hammondcare National Relay Service* 1300 555 727
Hammondcare National Relay Service SMS Relay* 0423 677 767
Who can I contact if I need emergency respite for someone living with dementia? Carer Gateway Emergency Respite 1800 422 737
Other Helplines
Older Person Advocacy Network (OPAN) https://opan.org.au/
Australian Pain Management Association https://www.painmanagement.org.au/ 
Palliative Care Advice Service https://www.pcas.org.au/ 
National Continence Helpline https://www.continence.org.au/
What do I do if the person I am caring for is experiencing behaviour disturbance? Behaviour Management Services
Dementia Behaviour Management Advisory Service https://www.dementia.com.au/dbmas
Guides
Where can I find a list of NDIS supported service providers? Disability Support Guide https://www.disabilitysupportguide.com.au/
Where can I find a list of all the permanent residential homes in Australia? Nursing home guide Australia https://www.agedcareguide.com.au/ 
Where can I find post-diagnostic information? Forward with Dementia https://forwardwithdementia.au/  
Dementia Australia Living with Dementia Program https://www.dementia.org.au/education/living-dementia-program 
Where can I purchase assistive aids? Assistive technology & aids for daily living
Aids for daily living https://shop.dps.com.au/ 
Where and how can I seek dementia counselling? Mental Health Services
Carer Gateway Australia https://www.carergateway.gov.au/ 
Dementia Australia counselling https://www.dementia.org.au/support/counselling
Are there dementia specific support groups?
Carers NSW https://www.carersnsw.org.au/ 
Dementia Australia Support Groups
Australian Frontotemporal Dementia Association https://theaftd.org.au/support-groups/ 
Progressive Supranuclear Palsy Support Group http://www.psp-australia.org.au/
How can I be involved in dementia research? Dementia Research Clinics
StepUpforDementia http://www.stepupfordementiaresearch.org.au/ 
Clinical trials website https://www.clinicaltrials.gov/ 
https://www.anzctr.org.au/
FTD Disorders Registry https://ftdregistry.org/ 
How is driving ability assessed in a person with dementia? Driving and Dementia
Austroads https://austroads.com.au/publications/assessing-fitness-to-drive/ap-g56/neurological-conditions/dementia 
How do I get my affairs in order? https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/dementia-early-planning
Education courses
Can I do a course on dementia? The University of Tasmania 'Understanding Dementia' MOOC https://www.utas.edu.au/wicking/understanding-dementia 
Dementia Training Australia https://dta.com.au/ 
*Helplines for individuals with speech and hearing impairment
Key Dementia Organisations
Australian Organisations
Australian Dementia Network https://www.australiandementianetwork.org.au/ 
Dementia Australia https://www.dementia.org.au/ 
The Australian Frontotemporal Dementia Association https://theaftd.org.au/ 
The Australian Aphasia Association https://aphasia.org.au/ 
PSP Australia http://www.psp-australia.org.au/index.html 
Occupational Therapy Australia https://otaus.com.au/ 
Dementia Support Australia https://www.dementia.com.au/ 
International Organisations
The University of California Memory & Ageing Centre https://memory.ucsf.edu/services/memory-and-aging-center-clinic 
Alzhiemer's Research UK https://www.alzheimersresearchuk.org/ 
The American Frontotemporal Dementia Assocation https://www.theaftd.org/
Rare Dementia Support UK https://www.raredementiasupport.org/ 
Dementia Alliance International https://dementiaallianceinternational.org/ 
Alzhiemer's Disease International https://www.alzint.org/ 
Alzhiemer's Association https://www.alz.org/global