Check out our downloadable FTD Service Directory here. This service directory includes:
- FTD Specialist Clinics and Research Centres
- Dementia Advocacy, Education, and Support Services
- Information about accessing community and residential support services
AFTDA will update this service directory as we establish networks in each State and Territory and as new services and programs are identified. For service and resource updates, please contact us. [Last updated November 2016]
The AFTDA Board is made up of Carer’s as well as members with various medical roles including representation from:
- FRONTIER (FTD Research Group at the University of Sydney Brain and Mind Centre) ; Twitter: @Frontier_Usyd; Facebook: frontierbrainandmind
- The Eastern Cognitive Disorders Clinic – check this website for the FTD toolkit including practical advice for carers about the type of support available in Australia
Australian websites:
- Alzheimer’s Australia – see the carers guide, guide to legal rights in dementia, as well as lots of other resources
- MND Australia (Motor Neuron Disease)
- PSP Australia (Progressive Supranuclear Palsy)
- Parkinson’s Australia (Parkinson’s disease and Parkinson’s Plus)
- Australian Aphasia Association
- Dementia Behaviour Management Advisory Services (DBMAS)
International advocacy websites:
- World FTD United
- The Association for Frontotemporal Degeneration (AFTD) – US based
- Rare Dementia Support – UK based
Support:
- FTD support forum
- Primary Progressive Aphasia support group
Social media:
- Facebook: follow World FTD United, the FTD Disorders Registry and Rare Dementias Support
- Twitter: follow us here, or follow World FTD United, the ICFTD 2018 Conference, the AFTD, Rare Dementia Support, FTD Registry, the French Association pour les Dégénérescences Fronto-Temporales, and the Dutch Lotgenoten organisatie voor Fronto Temporale Dementie.
- Remember to share your message along with the message “Many countries, one world, one hope to #EndFTD“
Research:
- Please consider joining the FTD Disorders Registry which brings together all those affected by FTD including patients, family members, caregivers, researchers and health professionals. The goal of the registry is to unite the international community to find treatments and cures for FTD. To find out more, visit our research page here or visit the registry here
The AFTDA has support from Dementia Australia.
For Wikipedia information go to: http://en.wikipedia.org/wiki/Pick’s_disease