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Welcome to the Australian Frontotemporal Dementia Association (AFTDA)

We welcome you to our website. Frontotemporal dementia (FTD) is a rare form of dementia, and here at the AFTDA we have experience with it. Many people including those diagnosed with FTD, or family, friends, and carers find themselves in unusual territory with no prior experience. We are here to help!

We are connected with several organisations around the world, all dedicated to FTD. We aim to be your trusted compass that offers direction around FTD to Australians navigating the challenges of FTD. We aim to assist by providing access to valuable information and resources.

What is Frontotemporal Dementia (FTD)?

FTD is a young-onset dementia, typically occuring between 45 and 65 years of age. Many thousands of Australians are thought to be suffering from this condition. To find out more about FTD, book mark this page, then view the information at the American AFTD website by clicking here)

 


 

AFTDA in partnership with Dementia Support Australia to launch Carer Conversations late 2024

 

 

The AFTDA are excited to announce a new partnership with Dementia Support Australia in launching Carer Conversations, a facilitated space to meet with other carers supporting someone living with FTD. There is additional support from clinical and neuropsychologists with expertise in FTD.

For more information and to register your interest in online and face-to-face groups in your area, click HERE.

 

 


The Royal Melbourne Hospital undertakes research on young-onset dementia

Important research is being undertaken by  Dr Priscilla Tjokrowijoto of the Royal Melbourne Hospital. If you are living with young-onset dementia (symptoms before age 65 years old) or caring for someone with young-onset dementia, consider contributing to understanding of services available before, during and after diagnosis by completing the following anonymous survey:

Individuals living with young-onset dementia: click here

Caregivers of individuals living with young-onset dementia: click here

If you are a clinician or service provider for individuals living with young-onset dementia, consider completing the following anonymous online survey:

Clinicians working with individuals with young-onset dementia: click here

Professional and community services, including the NDIS: click here

General practitioners: click here

The goal of this research is to inform a national system of care and roadmap of responsibility for individuals living with young-onset dementia.

 

 


Event: Movie Night & Discussion about early-onset dementia 

WHEN: Thursday 25th April 5:30pm EDT (8:30am AEST)

WHERE: This is an online event. Register by clicking here

The Massachusetts General Hospital Frontotemporal Disorders Unit in partnernship with the Massachusetts Alzheimer's Disease Research Center and Union Capital Boston present the screening of the short film Pedacito de Carne, a drama that follows a young millennial Hispanic woman caring for her mother who is living with FTD, followed by a live Q&A session with the filmmakers Dr Liliana Ramirez Gomez, Clinical Director, Memory Disorders Division within the MGH Neurology Department to raise awareness about young-onset dementia, its impact on caregivers and brain health for all.

Please note, this event will be conducted in Spanish, the film will be subtitled in English and Spanish.


Bruce Willis diagnosed with Frontotemporal dementia

On February 16, 2023 it was announced that American actor Bruce Willis had been diagnosed with Frontotemporal dementia. Willis’ family released a comprehensive and touching statement through the American FTD Association. In their statement, the Willis family thanked the public for their support, and highlighted the devastating impact that FTD can have, particularly when language difficulties are the main symptom, as is the case with Bruce Willis. They also wished to highlight that there is a need for more awareness and research of FTD so that others may not only understand but may also be helped through a diagnosis of FTD.

We are grateful to both Willis and his family for sharing this important news, as it will help to spread awareness about Frontotemporal dementia. We extend our support to the Willis family as they share this important news and continue in the journey with FTD.

The Willis family statement can be read here.

Professor Olivier Piguet of the Australian FTD Association was recently interviewed by Channel 10 on the diagnosis of Bruce Willis. Watch Prof Olivier comment on Bruce Willis' diagnosis here.